Had another newly diagnosed Acoustic Neuroma person send me a message in regards to the info. on my blog from when it started and thanking me for good information. Anyways, that got me to come back and read it 'again' (which has been awhile) from the beginning......I've had to laugh & cry.
My husband is one of the greatest men on earth. He has so much common sense and so many skills and SO much energy it makes me jealous some times. BUT, I have always said he is not one who is into the electronics, etc. like computers, cell phones, not even a TV remote :-) Reading back over some of his posts from when I first had surgery 6 months ago make me laugh. I can just invision him sitting in the waiting area or by my bedside taking forever trying to figure this thing out. Wish I would have been more with it because it would be a SUPER RARE sight to even see him sit still long enough to 'battle' it. Of course we were 3 1/2hrs away from home, so not much better to do.
The crying came along when reading all the comments made by so many all throughout the U.S. Good tears, so heartfelt. It is so great remembering how many people had my family and health care providers in their thoughts & prayers........THANKS AGAIN!!!
Friday, May 14, 2010
Thursday, May 6, 2010
Cranial Therapy
Well I started physical therapy again yesterday. This time is more of a focus in what is called Cranial Therapy and the neck area. The pains that really flared about 5 weeks ago had gotten much better with strong meds, but still tend to come & go. My doctor recommended a different therapy & different place. The therapist told me I may end up not feeling good awhile after the treatment. Sure enough, the treatment felt great and must have released some of those good endorphines for awhile, but last night the pain & pressure all flared big time. Now today it has been so bad I didn't feel like picking up my head...it just pulsed in pain & pressure. Back to the meds and rotate heat & ice. (it should get better with treatments)
Odd thing is the strong pain medicine I am on called Dilauhdid (generic) makes my tinnitus (ringing) WAY less, almost non exsistent. I find it interesting. Problem is, that is NOT a medicine to be on unless absolutely needed. It is a major drug, stronger than morphine. Such a bummer, why can't something like Tylenol just help like that!
BAROMETRIC PRESSURE:
Well, I am now quite a believer that my brain inflammation is also affected when the weather is changing. I have read lots about it, and had doctors tell me yes, for sure. It is basically referred to like someone with arthritis.....they tend to ache more when the weather is changing, or a storm is coming. WELL, that is me too. Supposedly there is a storm coming tomorrow and for me that creates the pressure in my head verses the pain in my skull base & neck. Yeah, maybe confusing, but at least I am finally understanding it all. Problem is I haven't found how to help relieve the pressure type pain......any ideas?
Many ask if the inflammation & pressure will go away. I have been told it should, but due to the problems I had with my brain right after surgery it can take a long time for the brain & nerves to heal. Plus there is no promises because of my secondary condition of Chiari Malformation. PATIENCE, I guess that is the only word I can think of.
Thanks again to everyone for your continual support. This journey has been crazy, and the doctors have been telling me to give it at least a year & hopefully things will be much better. So, patience for sure (some days much better than others)
Sorry if I haven't returned e-mails or phone calls or messages right away, please don't give up......I'm just still on the emotional rollercoaster with all of this too!
Odd thing is the strong pain medicine I am on called Dilauhdid (generic) makes my tinnitus (ringing) WAY less, almost non exsistent. I find it interesting. Problem is, that is NOT a medicine to be on unless absolutely needed. It is a major drug, stronger than morphine. Such a bummer, why can't something like Tylenol just help like that!
BAROMETRIC PRESSURE:
Well, I am now quite a believer that my brain inflammation is also affected when the weather is changing. I have read lots about it, and had doctors tell me yes, for sure. It is basically referred to like someone with arthritis.....they tend to ache more when the weather is changing, or a storm is coming. WELL, that is me too. Supposedly there is a storm coming tomorrow and for me that creates the pressure in my head verses the pain in my skull base & neck. Yeah, maybe confusing, but at least I am finally understanding it all. Problem is I haven't found how to help relieve the pressure type pain......any ideas?
Many ask if the inflammation & pressure will go away. I have been told it should, but due to the problems I had with my brain right after surgery it can take a long time for the brain & nerves to heal. Plus there is no promises because of my secondary condition of Chiari Malformation. PATIENCE, I guess that is the only word I can think of.
Thanks again to everyone for your continual support. This journey has been crazy, and the doctors have been telling me to give it at least a year & hopefully things will be much better. So, patience for sure (some days much better than others)
Sorry if I haven't returned e-mails or phone calls or messages right away, please don't give up......I'm just still on the emotional rollercoaster with all of this too!
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