I've had plenty people say they've checked the blog and not seen much and wonder.
Well, I'm bad, sorry.
My update isn't actually as good as some. The swelling/fullness/puffiness in the entire side of my surgery side is REALLY getting to me. Enough that I've scheduled an appointment with the neurotologist. Seems like it is getting worse everyday and it worries me because of the additional swelling I had in my brain after surgery, plus they were thinking I had a mastoid infection...possibly, and it almost feels like the facial paralysis is coming back. Just odd. Yeah, I'm only 9 weeks out, but I have found all these symptoms started getting worse after all the steroids, pain meds, and the antibiotic I was on all wore off.
When it comes to the brain, and all those nerves that these surgeries can effect, etc. it does worry me more. I literally get an actual swelling that runs down the side of my face from my cheek bone to up above my ear and a ways into the middle of the incision area. It is about 2" thick in width when it does it. It throws my speech off some at that time too, and increases the fullness and pressure in my head. Makes my ear inside painful. I have been told I'd take longer for healing, but I've been doing nothing to overdo it, etc.
Good news is the only time I really notice the tinnitus is when that swelling/fullness hits it tends to get high. Sometimes I notice a little when it is totally quiet. Still doing rehab for my neck and back and that helps greatly. I don't use prescription pain meds for weeks now and usually o.k. with over the counter if needed (no med helps with the fullness/pressure/swelling pain though). Rehab also helped my balance a lot too. That does go off though with those other symptoms too.
Mentally not always in the greatest place. I honestly thought I was gonna be one of those surgeries that worked out just fine and had my hearing, etc. WRONG, way off. Oh well, dealing with it as I can.
I think Trenton is having the hardest time with it because he wants me back volunteering at school. I told him I'm not used to the deafness on one side yet, and those other symptoms hit witout warning, so not a good idea. It's hard enough being around more than one person, I can't understand what's being said, etc. Plus if the noises get too loud it makes me sick feeling.
As for driving, thanks to the darling snow and the fact I'm not a good winter driver AND these symptoms flaring whenever, I haven't even attempted it. That is working out o.k. though, things work out just fine.
Hopefully that gives a few updates.
Thanks for thinking of me and the continuing prayers, etc.
Denise
Thursday, January 14, 2010
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Oh my gosh, I'm so sorry to hear you're not feeling well still. I will keep praying for you hon
ReplyDeleteDJ
Hey Denise,
ReplyDeleteI read a note you wrote on the AN blog to a newbie mentioning how all of our recoveries are so different and you were right about that. I also felt so charged and motivated by the success stories where people came out of surgery with hearing preserved and had very short recoveries. I regret that you and I (and so many others) did not have that positive experience where we could jump right back into our normal lives 4 weeks later. Those of us who do suffer more casualties, have our own battles to fight that are often unique from one person to the next. I still have my raging tinnitus while you have the fullness and swelling issues that I don't experience. What I do believe though, is that we will get better and it is so important that we don't put pressure on oursleves for not healing as quickly as we'd hoped. I still think of you and pray for you often and I really look forward to the day when we can both say we feel like we're back. We know things will never be the same, but I do believe we'll reach a point when we can carry on with our normal lifes activities and not even think about this AN surgery/recovery everyday. We will be happy and enjoy our life and loved ones even more so after all of our suffering. To feel well again will never go unappreciated or be taken for granted. We'll get there. Be patient and believe.
Big hugs to you!
Amy (newmommyLA)